Day 22

I wanted to publish a post with all of the details about Keatley's journey. I started to write one, but it was just too much information and too overwhelming.

In the NICU, everyone is always talking about the roller coaster of good days and bad days. We have definitely experienced that. In Keatley's first 24 hours she went from doing surprisingly well to "coding" and being put on ECMO. She finally stabilized and then her heart wasn't functioning properly. The next morning her heart was totally normal. This was just within her first three days.

It has been three weeks now and there have been numerous ups and downs. If there is an organ to be examined and concerned about, Keatley has been through it. Some of the things we have been through have been concerning and others have been horrific. There have been a few moments when we thought we were going to lose our little girl. There have also been times when she has amazed everyone. A few days ago the respiratory therapist came to re-tape the ventilator tubes to her mouth and Keatley moved and pushed the tubes out. She literally extubated herself, she did so well without the ventilator, they progressed her to a cpap machine. The doctors hadn't planned to extubate her for three more days.

She is doing great now. She is on pressurized oxygen to keep her airway open (which they are slowly weaning.) She is on two sedatives and a PRN blood pressure medication (which they are slowly weaning.) She is taking breast milk through a feeding tube. She gets about 2 teaspoons every 3 hours (which they are slowly increasing.)

I am a different person than I was 3 weeks ago. God has revealed Himself to me in a way that I cannot fully explain. His body has loved and supported us. The medical technology and brilliance of the doctors that He orchestrates is astounding. The strength He has instilled in this little girl...amazing. He has moved mountains when we have called upon His name. His goodness and mercy are overwhelming. His miracles are tangible. We are so humbled and thankful to be on this journey.

We are not off of the roller coaster yet. Please continue to seek Him on our behalf.


I tell you the truth, if you have faith as small as a mustard seed, you can say to this mountain, 'Move from here to there' and it will move. Nothing will be impossible for you."